Helpful Links for GIST Information
If you have additional questions or would like more information, the organizations listed below may be helpful.
The following web sites are maintained by third parties over whom Novartis Pharmaceuticals Corporation has no control. Novartis Pharmaceuticals Corporation makes no representation as to the accuracy or any other aspect of the information contained in these web sites.
Life Raft Group
http://www.liferaftgroup.orgThe Life Raft Group (LRG) is a non-profit organization providing support through information, education, and innovative research to patients with a rare cancer called GIST. There are local chapters in a growing number of cities throughout the world.
GIST Support International
http://www.gistsupport.orgGIST Support International (GSI) is and all-volunteer, non-profit organization that reaches out to GIST patients and their families and friends to provide education and support. GSI promotes and encourages ongoing research in the quest for a cure for Gastrointestinal Stromal Tumors.
GIST Cancer Research Fund
http://www.gistinfo.orgGIST Cancer Research Fund is an organization that creates funding to support research, as well as providing information on GIST to patients and healthcare professionals.
American Cancer Society®
National Home Office
1599 Clifton Road NE
Atlanta, GA 30329
Telephone: 1-800-ACS-2345
Website: http://www.cancer.org
Cancer Care®
275 7th Avenue
New York, NY 10001
Telephone: 1-800-813-HOPE
Website: http://www.cancercare.org
Cancer.net
American Society of Clinical Oncology
2318 Mill Road, Suite 800
Alexandria, VA 22314
Telephone: 571-483-1780 or 888-651-3038
Fax: 571-366-9537
http://www.cancer.net
The National Cancer Institute's Cancer Information Service
31 Center Drive, MSC 2580
Bethesda, MD 20892-2580
Telephone: 1-800-4-CANCER
Those with TTY equipment may call 1-800-332-8615
Fax: 1-800-624-2511
Website: http://www.cancer.gov/cis
http://cis.nci.nih.gov
National Comprehensive Cancer Network® Patient Information and Referral Service
Telephone: 1-888-909-NCCN
Fax: 1-215-728-3877
Website: http://www.nccn.org
National Organization for Rare Disorders
P.O. Box 1968
Danbury, CT 06813-1968
Telephone: 1-800-999-6673 or 1-203-746-6518
Fax: 1-203-746-6481
Website: http://www.rarediseases.org
Patient Advocate Foundation
700 Thimble Shoals Blvd., Suite 200
Newport News, VA 23606
Telephone: 1-800-532-5274
Fax: 1-757-873-8999
Website: http://www.patientadvocate.org
GIST Alliance
Patient Support Program
for GIST patients
& caregivers
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